Mapping the Pediatric Growth Hormone Deficiency Patient Journey
We developed a detailed patient journey map for pediatric growth hormone deficiency (PGHD), a chronic condition requiring long-term hormone therapy. Drawing on interviews and focus groups with 62 patients and caregivers across Europe, we identified six key stages of the journey: awareness, diagnosis, treatment planning, initiation, maintenance, and transition. This map highlights emotional challenges and treatment barriers, offering insights into...