This study identified the main topics people discuss about multiple sclerosis (MS) on Twitter and the sentiment linked to each. We analysed English-language tweets using Latent Dirichlet Allocation for topic modelling and SentiStrength for sentiment analysis. Conversations fell into four categories, and those about the burden of the condition and related chronic conditions were the most negative. (more…)
This systematic review examined the evidence supporting each professional role in a multidisciplinary multiple sclerosis (MS) care team. Following PRISMA guidelines, we searched PubMed and EMBASE for original research from the past decade and screened 612 records. The evidence supports the concept of a multidisciplinary MS unit, while revealing research gaps for some roles, such as occupational therapy.
This study explored how healthcare professionals perceive More Stamina, an app that helps people with multiple sclerosis (MS) manage fatigue, and how it could fit into clinical care. Guided by the Technology Acceptance Model, we combined interviews and questionnaires with healthcare professionals. They valued the app for facilitating data collection, revealing symptom patterns and supporting personalised care. (more…)
This study evaluated More Stamina, a gamified mobile app that helps people with multiple sclerosis (MS) manage fatigue, during 60 days of everyday use. Twenty participants from Oulu University Hospital tracked their daily activities while we measured fatigue, quality of life, usability and engagement, and interviewed them about their experience. The app proved feasible and acceptable, helping people become more...
We developed a detailed patient journey map for pediatric growth hormone deficiency (PGHD), a chronic condition requiring long-term hormone therapy. Drawing on interviews and focus groups with 62 patients and caregivers across Europe, we identified six key stages of the journey: awareness, diagnosis, treatment planning, initiation, maintenance, and transition. This map highlights emotional challenges and treatment barriers, offering insights into...
We developed a workshop aimed at exploring the unique challenges and opportunities in designing digital health and wellbeing technologies during pandemics. Using a multidisciplinary approach, the workshop introduces participants to a pandemic-stage matrix and fosters discussions on adapting design methods to rapidly changing societal needs. The initiative emphasizes the importance of user-centered design while navigating constraints like restricted user interaction...
We conducted a scoping review to investigate the role of informal carers of people with multiple sclerosis (pwMS) in digital health research. Out of 14 included studies, most focused on telemedicine, online education, or telerehabilitation, with varying degrees of involvement of family and friends (F&F). The findings indicate that while digital health can support carers and enhance their ability to...
We present a protocol for a prospective cross-sectional study to assess the usability and acceptability of the Digital Care Path for Living Kidney Donor Candidates, part of Finland’s Health Village portal. The study aims to gather feedback from living kidney donor candidates regarding the system's functionality, ease of use, and potential to enhance the donation process. The protocol outlines methods...
We proposed and developed a gamified digital platform to support adolescents with diabetes mellitus in managing their condition. By integrating gamification techniques such as point systems, achievements, and social support features, the platform aims to improve patient engagement and adherence to treatment plans. The platform also includes telemonitoring and education tools to enhance self-management and foster healthier lifestyles among young...
We investigated how smart home applications (SMAs) can support cognitive health for older adults. These technologies, combining sensors, automation, and digital interfaces, help monitor cognitive and physical conditions, provide cognitive training, and facilitate social connections. By focusing on usability, accessibility, and user-centric design, SMAs have the potential to improve independence and quality of life for older individuals. (more…)
