multiple sclerosis

The Role of Informal Carers in Digital Health Research for Multiple Sclerosis: A Scoping Review

We conducted a scoping review to investigate the role of informal carers of people with multiple sclerosis (pwMS) in digital health research. Out of 14 included studies, most focused on telemedicine, online education, or telerehabilitation, with varying degrees of involvement of family and friends (F&F). The findings indicate that while digital health can support carers and enhance their ability to...

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Leveraging Patient-Generated Data for Better MS Care

We explored how healthcare professionals (HCPs) perceive and utilize patient-generated health data (PGHD) from mobile health (mHealth) solutions in managing multiple sclerosis (MS). Through interviews and participatory workshops, we found that HCPs valued subjective data, such as patient habits, lifestyles, and fatigue-inducing activities, but faced challenges in making this data actionable. These findings highlight the potential of mHealth in fostering...

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Exploring Mobile Apps for Multiple Sclerosis: A Systematic Review

We conducted a systematic review of mobile applications for individuals with Multiple Sclerosis (MS) to understand the current landscape of these digital tools. Searching major app stores, we identified 25 relevant apps from over 1,600 initial results. Most apps focused on providing information about MS and its treatments, with limited features supporting disease management or patient support. Our findings highlight...

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Do mHealth Apps for Multiple Sclerosis Meet Patient Needs?

We assessed how well mobile health apps meet the needs of people with multiple sclerosis (MS). From a systematic review of app stores, we identified 30 apps focused on MS. While many offered patient education and data visualization, critical features like energy management, remote monitoring, and gamification were largely absent. Our findings suggest that current MS mHealth apps fall short...

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Digital Health Research with Patient and Public Involvement: Lessons

Patient and Public Involvement (PPI) plays a vital role in making digital health solutions more effective and user-friendly. The "More Stamina" project, which focused on designing an mHealth app for fatigue management in individuals with Multiple Sclerosis (MS), highlights how PPI can guide research. The project reveals insights into the roles patients can take, challenges in implementation, and strategies to...

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More Stamina: Gamified mHealth for Managing Fatigue in Multiple Sclerosis

This study outlines the design, prototyping, and usability evaluation of "More Stamina," a gamified mHealth app aimed at helping individuals with Multiple Sclerosis (MS) manage fatigue. Developed through a user-centered design approach, the app incorporates behavioral change models and gamification techniques to encourage self-management. Usability testing revealed insights for refining app features, emphasizing simplicity, customization, and a positive user experience....

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Protocol for Exploring Feasibility of More Stamina: An mHealth App for Fatigue Management in MS

This is a study protocol designed for the evaluation of "More Stamina," a mHealth app designed to help individuals with Multiple Sclerosis (MS) manage fatigue. The approach intends to use a mixed-methods, multicenter study to assess the app's feasibility, acceptability, and usability among MS patients in Argentina, Spain, and Switzerland. The study incorporates both qualitative and quantitative methods to explore...

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Workshops on Designing Gamified Solutions for Health

A series of workshop focusing on creating gamified designs to improve engagement among young patients with chronic conditions, particularly Multiple Sclerosis (MS). Participants explored various gamification frameworks and methodologies, brainstorming solutions to enhance adherence to physical activity. The sessions combined theoretical insights and hands-on exercises, producing actionable designs with potential applications for broader health challenges. (more…)

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Navigating Challenges in Patient and Public Involvement for Digital Health Development

This study examines the challenges of integrating Patient and Public Involvement (PPI) into the development of a digital health solution for Multiple Sclerosis (MS) using agile methods. By analyzing the case of the "More Stamina" project, the research identifies key obstacles, including participant selection, onboarding, task framing, communication, and reimbursement, and offers recommendations for enhancing PPI practices in digital health...

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Healthcare Professionals’ Insights on Patient-Generated Health Data for Chronic Care

This study explores how healthcare professionals (HCPs) view the integration of patient-generated health data from self-management mHealth solutions into clinical care. Interviews with 23 HCPs from Finland, Spain, and Switzerland reveal optimism about the potential of PGHD for monitoring, prevention, research, and enhancing transparency in care. However, concerns about data utility and integration remain barriers to full adoption.

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